Disha Shetty, a freelance science journalist, captures the rare disease journey and h challenges to drug development for the online Health Science periodical - The Wire
What Is Life Like When Lived With a Very Rare Disorder?
Neena Nizar with Harvard Medical School researchers, from left, Harald Jueppner, Thomas Gardella and John Potts. A research agreement between Harvard Medical School and the National Institutes of Health aims to develop a therapy for the condition that affects Nizar.
