The Jansen’s Foundation hosts first ever Skeletal Dysplasia Conference in Nebraska

The Jansen’s Foundation visits Amicus Therapeutics for the Healing Beyond the Diagnosis initiative.

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare disease and their impact on patient’s lives.

This special team is made up of passionate and committed individuals seeking to make a meaningful difference for the RARE community

The Jansen's Foundation was invited to an executive-level reception hosted by BiotechTuesday and Mass Innovation Labs with the Center for Rare Neurological Diseases at the Massachusetts General Hospital.

Through Running for Rare, NORD’s signature charity marathon team, runners join together to raise awareness for rare disease while fundraising to support undiagnosed patients.