Two Coast moms are headed to the nation's capitol to meet with lawmakers about ways to fund research and find cures. One of the advocates is Dona Krystosek, mother to Levi Krystosek.
Neena Nizar with Harvard Medical School researchers, from left, Harald Jueppner, Thomas Gardella and John Potts. A research agreement between Harvard Medical School and the National Institutes of Health aims to develop a therapy for the condition that affects Nizar.
